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2021-07-07Zeitschriftenartikel
Recommendations to plan a national burden of disease study
dc.contributor.authorHaneef, Romana
dc.contributor.authorSchmidt, Jürgen
dc.contributor.authorGallay, Anne
dc.contributor.authorDevleeschauwer, Brecht
dc.contributor.authorGrant, Ian
dc.contributor.authorRommel, Alexander
dc.contributor.authorWyper, Grant M.A.
dc.contributor.authorvan Oyen, Herman
dc.contributor.authorHilderink, Henk
dc.contributor.authorZiese, Thomas
dc.contributor.authorNewton, John
dc.date.accessioned2024-08-13T15:33:48Z
dc.date.available2024-08-13T15:33:48Z
dc.date.issued2021-07-07none
dc.identifier.other10.1186/s13690-021-00652-x
dc.identifier.urihttp://edoc.rki.de/176904/11908
dc.description.abstractBackground: The InfAct (Information for Action) project is a European Commission Joint Action on Health Information which has promoted the potential role of burden of disease (BoD) approaches to improve the current European Union-Health Information System (EU-HIS). It has done so by raising awareness of the concept, the methods used to calculate estimates and their potential implications and uses in policymaking. The BoD approach is a systematic and scientific effort to quantify and compare the magnitude of health loss due to different diseases, injuries, and risk factors with estimates produced by demographic characteristics and geographies for specific points in time. Not all countries have the resources to undertake such work, and may therefore start with a more restricted objective, e.g., a limited number of diseases, or the use of simple measures of population health such as disease prevalence or life expectancy. The main objective to develop these recommendations was to facilitate those countries planning to start a national burden of disease study. Results: These recommendations could be considered as minimum requirements for those countries planning to start a BoD study and includes following elements: (1) Define the objectives of a burden of disease study within the context of your country, (2) Identify, communicate and secure the benefits of performing national burden of disease studies, (3) Secure access to the minimum required data sources, (4) Ensure the minimum required capacity and capability is available to carry out burden of disease study, (5) Establish a clear governance structure for the burden of disease study and stakeholder engagement/involvement, (6) Choose the appropriate methodological approaches and (7) Knowledge translation. These were guided by the results from our survey performed to identify the needs of European countries for BoD studies, a narrative overview from four European countries (Belgium, Germany, The Netherlands and Scotland) and the summary of a comparative study of country health profiles with national health statistics. Conclusions: These recommendations as minimum requirements would facilitate efforts by those European countries who intend to perform national BoD studies.eng
dc.language.isoengnone
dc.publisherRobert Koch-Institut
dc.rights(CC BY 3.0 DE) Namensnennung 3.0 Deutschlandger
dc.rights.urihttp://creativecommons.org/licenses/by/3.0/de/
dc.subjectburden of diseaseeng
dc.subjectDALYseng
dc.subjectYLLeng
dc.subjectYLDeng
dc.subjectInfActeng
dc.subjectburden-eueng
dc.subjecteuropean burden of disease networkeng
dc.subjectpopulation healtheng
dc.subject.ddc610 Medizin und Gesundheitnone
dc.titleRecommendations to plan a national burden of disease studynone
dc.typearticle
dc.identifier.urnurn:nbn:de:0257-176904/11908-8
dc.type.versionpublishedVersionnone
local.edoc.container-titleArchives of Public Healthnone
local.edoc.container-issn2049-3258none
local.edoc.pages8none
local.edoc.type-nameZeitschriftenartikel
local.edoc.container-typeperiodical
local.edoc.container-type-nameZeitschrift
local.edoc.container-urlhttps://archpublichealth.biomedcentral.com/none
local.edoc.container-publisher-nameSpringer Naturenone
local.edoc.container-volume79none
local.edoc.container-reportyear2021none
dc.description.versionPeer Reviewednone

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