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Browsing Journal of Health Monitoring by Author "Wehrle, Julius"

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    • 2023-12-13Zeitschriftenartikel
      Forschung zu Seltenen Erkrankungen in Deutschland - Das GAIN-Register: Ein Register für Personen mit angeborenen Multi-Organ-Autoimmunerkrankungen 
      Stapornwongkul, Cynthia; Nieters, Alexandra; Staus, Paulina; Rusch, Stephan; Delor, Anita; Baumann, Ulrich; Wehrle, Julius; Boerries, Melanie; Seidel, Markus G.; Grimbacher, Bodo; Kindle, Gerhard
      Hintergrund: Patientenregister sind insbesondere im Bereich der seltenen Erkrankungen ein wichtiges Instrument für die Vernetzung der medizinischen Betreuenden und die Forschung. Bei Multi-Organ-Autoimmunerkrankungen leiden ...
    • 2023-12-13Zeitschriftenartikel
      Research on Rare Diseases in Germany – The GAIN Registry: a registry for individuals with congenital multi-organ autoimmune diseases 
      Stapornwongkul, Cynthia; Nieters, Alexandra; Staus, Paulina; Rusch, Stephan; Delor, Anita; Baumann, Ulrich; Wehrle, Julius; Boerries, Melanie; Seidel, Markus G.; Grimbacher, Bodo; Kindle, Gerhard
      Background: Patient registries are an important tool for networking medical caregivers and research, especially in the field of rare diseases. Individuals afflicted by multi-organ autoimmune diseases typically suffer from ...
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