2023-12-13Zeitschriftenartikel
Research on Rare Diseases in Germany – The GAIN Registry: a registry for individuals with congenital multi-organ autoimmune diseases
Stapornwongkul, Cynthia; Nieters, Alexandra; Staus, Paulina; Rusch, Stephan; Delor, Anita; Baumann, Ulrich; Wehrle, Julius; Boerries, Melanie; Seidel, Markus G.; Grimbacher, Bodo; Kindle, Gerhard
Background: Patient registries are an important tool for networking medical caregivers and research, especially in the field of rare diseases. Individuals afflicted by multi-organ autoimmune diseases typically suffer from ...
