Browsing Journal of Health Monitoring by Subject "Rare Diseases"
Now showing items 1-3 of 3
-
2023-12-13ZeitschriftenartikelRare diseases in Germany - Developments in the status of medical care Background: Rare diseases are a heterogeneous group of complex clinical patterns, which more often than not run a chronic course. The fact that they are rare complicates the provision of medical care for the specific ...
-
2023-12-13ZeitschriftenartikelResearch on Rare Diseases in Germany - Cancer Predisposition Syndrome Registry Background: Cancer predisposition syndromes (CPS) are rare diseases that are associated with an increased risk of cancer due to genetic alterations. At least 8 % of all cases of childhood cancer are attributable to CPS. ...
-
2023-12-13ZeitschriftenartikelResearch on Rare Diseases in Germany – The GAIN Registry: a registry for individuals with congenital multi-organ autoimmune diseases Background: Patient registries are an important tool for networking medical caregivers and research, especially in the field of rare diseases. Individuals afflicted by multi-organ autoimmune diseases typically suffer from ...