First results from the study ‘Disease knowledge and information needs - Diabetes mellitus (2017)’
Paprott, Rebecca
Heidemann, Christin
Stühmann, Lena M.
Baumert, Jens
Du, Yong
Hansen, Sylvia
Zeisler, Marie-Luise
Lemcke, Johannes
Beyhl, Silke
Kuhnert, Ronny
Schmidt, Christian
Gabrys, Lars
Teti, Andrea
Ziese, Thomas
Schmich, Patrick
Gellert, Paul
Zahn, Daniela
Scheidt-Nave, Christa
Very little research has been undertaken into what people in Germany know about diabetes, the information they
may require about the condition, where they look for such information and how they rate the information currently
available. In 2017, the Robert Koch Institute (RKI) carried out a nationwide telephone survey aimed at answering
these questions. The study entitled ‘Disease knowledge and information needs - Diabetes mellitus (2017)’ focused
on people aged at least 18 years. A total of 2,327 people without diabetes and 1,479 people with diagnosed diabetes
were interviewed for the study. First results show that 56.7% of people without diabetes and 92.8% of those with
diabetes rate their knowledge about the condition as ‘very good’ or ‘good’. People without diabetes were found to
have the strongest need for information in terms of ‘lifestyle changes, health promotion and disease prevention’,
whereas respondents with diabetes stressed the strongest need for information about ‘treatment and therapy’.
Almost a third of respondents without diabetes have actively sought information about diabetes at least once, mostly
via print media. Patients with diabetes stated that their general practitioner was their most frequent source of
information about the condition. In both groups, about half of respondents reported that they found it difficult to
judge the trustworthiness of the information published in the media about diabetes. The results of the study form
part of the German National Diabetes Surveillance, which is coordinated by the RKI. The data are also intended to
be used by the Federal Centre for Health Education to develop a strategy to improve the information provided about
diabetes.
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